Allies and obstacles: disability activism and parents of children with disabilities by
Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles. The authors chronicle parents' path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex--and often tense--relationship of parents to disability rights organizations and activism. The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.
Beasts of Burden by
2018 American Book Award Winner A beautifully written, deeply provocative inquiry into the intersection of animal and disability liberation--and the debut of an important new social critic How much of what we understand of ourselves as "human" depends on our physical and mental abilities--how we move (or cannot move) in and interact with the world? And how much of our definition of "human" depends on its difference from "animal"? Drawing on her own experiences as a disabled person, a disability activist, and an animal advocate, author Sunaura Taylor persuades us to think deeply, and sometimes uncomfortably, about what divides the human from the animal, the disabled from the nondisabled--and what it might mean to break down those divisions, to claim the animal and the vulnerable in ourselves, in a process she calls "cripping animal ethics." Beasts of Burden suggests that issues of disability and animal justice--which have heretofore primarily been presented in opposition--are in fact deeply entangled. Fusing philosophy, memoir, science, and the radical truths these disciplines can bring--whether about factory farming, disability oppression, or our assumptions of human superiority over animals--Taylor draws attention to new worlds of experience and empathy that can open up important avenues of solidarity across species and ability. Beasts of Burden is a wonderfully engaging and elegantly written work, both philosophical and personal, by a brilliant new voice.
Crippled: austerity and the demonization of disabled people by
The austerity crisis and threat to disability rights In austerity Britain, disabled people have been recast as worthless scroungers. From social care to the benefits system, politicians and the media alike have made the case that Britain's 12 million disabled people are nothing but a drain on the public purse. In Crippled, journalist and campaigner Frances Ryan exposes the disturbing reality, telling the stories of those most affected by this devastating regime. It is at once both a damning indictment of a safety net so compromised it strangles many of those it catches and a passionate demand for an end to austerity, which hits hardest those most in need.
Demystifying disability: what to know, what to say, and how to be an ally by
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place. An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and whatnotto do) andhow you can help make the world a more inclusive place ONE OF THE BEST BOOKS OF THE YEAR- NPR, Booklist . "A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear."-Rebekah Taussig, author of Sitting Pretty- The View from My Ordinary, Resilient, Disabled Body People with disabilities are the world's largest minority, an estimated 15 percent of the global population. But many of us-disabled and nondisabled alike-don't know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including- . How to appropriately think, talk, and ask about disability . Recognizing and avoiding ableism (discrimination toward disabled people) . Practicing good disability etiquette . Ensuring accessibility becomes your standard practice, from everyday communication to planning special events . Appreciating disability history and identity . Identifying and speaking up about disability stereotypes inmedia Authored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience. Praise for Demystifying Disability "Whether you have a disability, or you are non-disabled, Demystifying Disability is a MUST READ. Emily Ladau is a wise spirit who thinks deeply and writes exquisitely."-Judy Heumann, international disability rights advocate and author of Being Heumann "Emily Ladau has done her homework, and Demystifying Disability is hercandid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation. A teacher who makes you forget you're learning, Emily makes the intimidating approachable and the complicated clear. This book is a generous and needed gift."-Rebekah Taussig, author of Sitting Pretty- The View from My Ordinary Resilient Disabled Body
From Wallflowers to Bulletproof Families: The Power of Disability in Young Adult Narratives by
Uses of disability in literature are often problematic and harmful to disabled people. This is also true, of course, in children's and young adult literature, but interestingly, when disability is paired and confused with adolescence in narratives, compelling, complex arcs often arise. In From Wallflowers to Bulletproof Families: The Power of Disability in Young Adult Narratives, author Abbye E. Meyer examines different ways authors use and portray disability in literature. She demonstrates how narratives about and for young adults differ from the norm. With a distinctive young adult voice based in disability, these narratives allow for readings that conflate and complicate both adolescence and disability. Throughout, Meyer examines common representations of disability and more importantly, the ways that young adult narratives expose these tropes and explicitly challenge harmful messages they might otherwise reinforce. She illustrates how two-dimensional characters allow literary metaphors to work, while forcing texts to ignore reality and reinforce the assumption that disability is a problem to be fixed. She sifts the freak characters, often marked as disabled, and she reclaims the derided genre of problem novels arguing they empower disabled characters and introduce the goals of disability-rights movements. The analysis offered expands to include narratives in other media: nonfiction essays and memoirs, songs, television series, films, and digital narratives. These contemporary works, affected by digital media, combine elements of literary criticism, narrative expression, disability theory, and political activism to create and represent the solidarity of family-like communities.
The Disability Rights Movement: From Charity to Confrontation by
In this updated edition, Doris Zames Fleischer and Frieda Zames expand their encyclopedic history of the struggle for disability rights in the United States, to include the past ten years of disability rights activism.The book includes a new chapter on the evolving impact of the Americans with Disabilities Act, the continuing struggle for cross-disability civil and human rights, and the changing perceptions of disability. The authors provide a probing analysis of such topics as deinstitutionalization, housing, health care, assisted suicide, employment, education, new technologies, disabled veterans, and disability culture. Based on interviews with over one hundred activists, The Disability Rights Movement tells a complex and compelling story of an ongoing movement that seeks to create an equitable and diverse society, inclusive of people with disabilities.
Twenty-Two Cents an Hour: Disability Rights and the Fight to End Subminimum Wages by
In Twenty-Two Cents an Hour, Doug Crandell uncovers the harsh reality of people with disabilities in the United States who are forced to work in unethical conditions for subminimum wages with little or no opportunity to advocate for themselves, while wealthy CEOs grow even wealthier as a direct result. As recently as 2016, the United States Congress enacted bipartisan legislation which continued to allow workers with disabilities to legally be paid far lower than the federal minimum wage. Drawing on ongoing federal Department of Justice lawsuits, the horrifying story of Henry's Turkey Farm in Iowa, and more, Crandell shows the history of the policies that have led to these unjust outcomes, examines who benefits from this legislation, and asks important questions about the rise of a disability industrial complex. Exposing this complex?which is rooted in profit, lobbying, and playing on the emotions of workers' parents and families, as well as the public?Crandell challenges readers to reexamine how we treat some of our most vulnerable fellow citizens. Twenty-Two Cents an Hour forces the reader to face the reality of this exploitation, and builds the framework needed for reform.
Accessibility Denied. Understanding Inaccessibility and Everyday Resistance to Inclusion for Persons with Disabilities by
This book explores the societal resistance to accessibility for persons with disabilities, and tries to set an example of how to study exclusion in a time when numerous policies promise inclusion. With 12 chapters organised in three parts, the book takes a comprehensive approach to accessibility, covering transport and communication, knowledge and education, law and organisation. Topics within a wide cross-disciplinary field are covered, including disability studies, social work, sociology, ethnology, social anthropology, and history. The main example is Sweden, with its implementation of the United Nations Convention on the Rights of Persons with Disabilities within the context of the Nordic welfare state. By identifying and discussing persistent social and cultural conditions as well as recurring situations and interactions that nurture resistance to advancing accessibility, despite various strong laws promoting it, the book's conclusions are widely transferable. It argues for the value of alternating between methods, theoretical perspectives, and datasets to explore how new arenas, resources and technologies cause new accessibility concerns -- and possibilities -- for persons living with impairments. We need to be able to follow actors closely to uncover how they feel, act, and argue, but also to connect to wider discursive and institutional patterns and systems. This book will be of interest to scholars and students of disability studies, social work, sociology, ethnology, social anthropology, political science, and organisation studies.
Writers on the Spectrum : How Autism and Asperger Syndrome Have Influenced Literary Writing by
From Hans Christian Andersen's fairytale characters to Lewis Carroll's Wonderland and Emily Dickinson's poetic imagery, the writings and lives of some of the world's most celebrated authors indicate signs of autism and Asperger's Syndrome. Through analysis of biographies, autobiographies, letters and diaries, Professor Julie Brown identifies literary talents who display characteristics of Autistic Spectrum Disorder (ASD) and uncovers the similarities in their writing that suggest atypical, autistic brains. Providing close readings of authors' works, Brown explores writing processes, content, theme, structure and writing style to reveal the underlying autistic traits that have influenced their writing. The book provides an overview of ASD and common threads in autistic writing followed by an illuminating exploration of how these threads are evident in the literature of both well-known and lesser known authors. This groundbreaking study of autism in literature will be of interest to anyone with a professional or personal interest in literature or the autistic mind.
Disability is not Inability: A Quest for Inclusion and Participation of People with Disability in Society by
This book is about people with disabilities (PWDs) and the extraordinary talents they have that can contribute towards the world economy generally and that of Southern and Central Africa in particular. The papers selected for this book were presented at an international conference that was held at the University of Botswana from 16th to 19th October 2018. The conference was held in order to address the injustices, discrimination and exclusion that people with disabilities face in their daily life. The papers discuss the need to train families and leaders in disability awareness, for clear national policies, the funding needed to address issues that affect PWDs, inclusive education, and the need to create a conducive environment and the implementation of policies, strategies and programmes. The book also points to the importance of sharing stories and experiences of success as a strategy of empowering PDWs.
Intellectual disability: A conceptual history, 1200–1900 by
This collection explores the historical origins of our modern concepts of intellectual or learning disability. The essays, from some of the leading historians of ideas of intellectual disability, focus on British and European material from the Middle Ages to the late-nineteenth century and extend across legal, educational, literary, religious, philosophical and psychiatric histories. They investigate how precursor concepts and discourses were shaped by and interacted with their particular social, cultural and intellectual environments, eventually giving rise to contemporary ideas. The collection is essential reading for scholars interested in the history of intelligence, intellectual disability and related concepts, as well as in disability history generally.
No Right to Be Idle: The Invention of Disability, 1840s-1930s by
During the late nineteenth and early twentieth centuries, Americans with all sorts of disabilities came to be labeled as "unproductive citizens." Before that, disabled people had contributed as they were able in homes, on farms, and in the wage labor market, reflecting the fact that Americans had long viewed productivity as a spectrum that varied by age, gender, and ability. But as Sarah F. Rose explains in No Right to Be Idle, a perfect storm of public policies, shifting family structures, and economic changes effectively barred workers with disabilities from mainstream workplaces and simultaneously cast disabled people as morally questionable dependents in need of permanent rehabilitation to achieve "self-care" and "self-support." By tracing the experiences of policymakers, employers, reformers, and disabled people caught up in this epochal transition, Rose masterfully integrates disability history and labor history. She shows how people with disabilities lost access to paid work and the status of "worker--a shift that relegated them and their families to poverty and second-class economic and social citizenship. This has vast consequences for debates about disability, work, poverty, and welfare in the century to come.
Disability in the Media : Examining Stigma and Identity by
Disability in the Media: Examining Stigma and Identity looks at how disabilities are portrayed within the media and how individuals with disabilities are affected by their representation. The effects of media representation can be seen both at the level of the individual, with effects on self-identity for those with a disability, and at the level of society as a whole, with these portrayals playing a role in the social construction of disability, often further stigmatizing individuals with disabilities. On all levels, research has ended with a call to media producers, asking those in the entertainment industry to think about how they are portraying disability, to hire actors with disabilities, and to realize that the "supercrip" may not always be the most positive portrayal of disability. This book looks at the current status of disability representation in television and the popular press, offering case studies that examine their effect on individuals with disabilities and making suggestions for improving media representation and battling the perpetuation of social stigmas.
Lived Experiences of Ableism in Academia: Strategies for Inclusion in Higher Education by
Demands for excellence and efficiency have created an ableist culture in academia. What impact do these expectations have on disabled, chronically ill and neurodivergent colleagues? This important and eye-opening collection explores ableism in academia from the viewpoint of academics' personal and professional experiences and scholarship. Through the theoretical lenses of autobiography, autoethnography, embodiment, body work and emotional labour, contributors from the UK, Canada and the US present insightful, critical, analytical and rigorous explorations of being 'othered' in academia. Deeply embedded in personal experiences, this perceptive book provides examples for universities to develop inclusive practices, accessible working and learning conditions and a less ableist environment.
Disability Visibility by
"Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again." --Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent--but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson's account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Fearlessly different: an autistic actor's journey to Broadway's biggest stage by
... powerfully renders what it's like to live life to the fullest. Publishers Weekly Starred Review My name is Mickey Rowe. I am an actor, a theatre director, a father, and a husband. I am also a man with autism. You think those things don't go together? Let me show you that they do. Growing up, Mickey Rowe was told that he couldn't enter the mainstream world. He was iced out by classmates and colleagues, infantilized by well-meaning theatre directors, barred from even earning a minimum wage. Why? Because he is autistic. Fearlessly Different: An Autistic Actor's Journey to Broadway's Biggest Stage is Mickey Rowe's story of growing up autistic and pushing beyond the restrictions of a special education classroom to shine on the stage. As an autistic and legally blind person, living in a society designed by and for non-disabled people, it was always made clear to Mickey the many things he was apparently incapable of doing. But Mickey did them all anyway--and he succeeded because of, not in spite of, his autism. He became the first autistic actor to play the lead role in the play The Curious Incident of the Dog in the Night-Time, landed the title role in the play Amadeus, co-created the theatre/philanthropy company Arts on the Waterfront, and founded the National Disability Theatre. Mickey faced untold obstacles along the way, but his story ends in triumph. Many people feel they are locked out of the world of autism--that it's impossible to even begin to understand. In Fearlessly Different, Mickey guides readers to that world while also helping those with autism to feel seen and understood. And he shows all people--autistic and non-autistic alike--that the things that make us different are often our biggest strengths.
On the Beat of Truth: A Hearing Daughter's Stories of Her Black Deaf Parents by
As an African American woman born in 1943, Maxine Childress Brown possessed a unique vantage point to witness the transformative events in her parents' lives. Both came from the South -- her father, Herbert Childress, from Nashville, TN, and her mother, Thomasina Brown, from Concord, NC. The oldest of three daughters, Maxine was fascinated by her parents' stories. She marveled at how they raised a well-respected, middle-class family in the midst of segregation with the added challenge of being deaf. Her parents met in Washington, DC, where they married and settled down. Her father worked as a shoe repairman for $65 per week for more than 15 years. A gifted seamstress, her mother gave up sewing to clean houses. Because of their modest means, Maxine and her sisters lived more than modest lives. When Maxine's tonsils became infected, her parents could not afford the operation to have them removed. For her high school prom, her mother bought her a dress on credit because she had no time to sew. Herbert Childress showed great love for his young daughters, but events turned him to bitterness and to drink. Throughout all, Thomasina encouraged her girls, always urging them to excel. She demanded their honest best with her signature phrase, her flat hand raised from her mouth straight up in the air, "on the beat of truth."
This Brain Had a Mouth: Lucy Gwin and the Voice of Disability Nation by
Author, advocacy journalist, disability rights activist, feminist, and founder of Mouth magazine, Lucy Gwin (1943--2014) made her mark by helping those in "handicaptivity" find their voice. Gwin produced over one hundred issues of the magazine--one of the most radical and significant disability rights publications--and masterminded its acerbic, sometimes funny, and often moving articles about people from throughout the disability community. In this engrossing biography, James M. Odato provides an intimate portrait of Gwin, detailing how she forged her own path into activism. After an automobile accident left her with a brain injury, Gwin became a tireless advocate for the equal rights of people she termed "dislabled." More than just a publisher, she fought against corruption in the rehabilitation industry, organized for the group Not Dead Yet, and much more. With Gwin's story at the center, Odato introduces readers to other key disability rights activists and organizations, and supplies context on current contentious topics such as physician-assisted suicide. Gwin's impact on disability rights was monumental, and it is time her story is widely known.
Sounds Like Home: Growing Up Black and Deaf in the South by
Originally published in 1999, Sounds Like Home adds an important dimension to the canon of deaf literature by presenting the perspective of an African American deaf woman who attended a segregated deaf school. Mary Herring Wright documents her life from the mid-1920s to the early 1940s, offering a rich account of her home life in rural North Carolina and her education at the North Carolina School for the Deaf and Blind, which had a separate campus for African American students. This 20th anniversary edition of Wright's story includes a new introduction by scholars Joseph Hill and Carolyn McCaskill, who note that the historical documents and photographs of segregated Black deaf schools have mostly been lost. Sounds Like Home serves "as a permanent witness to the lives of Black Deaf people."
Bodies of Truth: Personal Narratives on Illness, Disability, and Medicine by
2019 Foreword INDIES Award, Gold for Anthologies "Medicine still contains an oral tradition, passed down in stories: the stories patients tell us, the ones we tell them, and the ones we tell ourselves," writes contributor Madaline Harrison. Bodies of Truth continues this tradition through a variety of narrative approaches by writers representing all facets of health care. And, since all of us have been or will be touched by illness or disability--our own or that of a loved one--at some point in our lives, any reader of this anthology can relate to the challenges, frustrations, and pain--both physical and emotional--that the contributors have experienced. Bodies of Truth offers perspectives on a wide array of issues, from food allergies, cancer, and neurology to mental health, autoimmune disorders, and therapeutic music. These experiences are recounted by patients, nurses, doctors, parents, children, caregivers, and others who attempt to articulate the intangible human and emotional factors that surround life when it intersects with the medical field.
A Chance by
A Chance is the engrossing, heartwarming story of afamily's struggles and triumphs. The narrativefollows Cristina Durán and Miguel Giner Bou as they rebuild and reinventthemselves after their daughter Laia is born with cerebral palsy. Hospitals,rehabilitation centers, and doctors become part of their daily routine. There isone chance in a thousand that Laia will pull throughï¿9;and theyhold on to that chance with tremendous strength and indomitablejoy. Years later, with the same courage anddetermination, Cristina and Miguel embark on the arduous process of adoptingtheir second daughter, Selam, from Ethiopia. This time, they face a long periodof training, psychological tests, interviews, and formalities before they caneven pack their bags. And when they return with Selam, the challenge ofreinvention awaits them yet again.